Thursday, June 13, 2019

not one but two


The past week's worth of days have been so busy what with working on the mold (of which all forward progress came to a screeching halt last Sunday morning and has yet to resume) and the visit from Kathy and the appointment with the electrophysiologist and a surprise visit from grandgirl Autumn just a bit ago that here it is late afternoon or early evening depending on where you live and how you measure such things and still so many chores to take care of, a big one of which is to start putting up some of the three bags of tomatoes I have in the refrigerator but it's too late in the day to start something like that. I should have finished that mold on Tuesday after Kathy headed home but I didn't, instead being lazy all day. Wednesday was all about the doctor's appointment and today was all about absorbing that.

So, yes, I finally had my appointment with the electrophysiologist, the cardiac specialist that specializes in heart rhythms. My appointment was at 11:15, I finally got in sometime shortly after noon. The cardiac RNP had sent my file over previously so basically all they did was take my blood pressure and do another EKG, since I was having an episode while I was there, before the doctor came in. So it turns out I have two different heart rhythm abnormalities, atrial flutter and atrial fibrillation. You can have one without the other but if you start with flutter you generally develop afib and the older you are, the more likely you are to develop it. He wants to do a catheter ablation  now for the flutter and then try and treat the afib with drugs before considering the ablation for afib as that is a more invasive and difficult procedure so since the drugs I've been on aren't doing the job he wants to try a different one, sotalol, that requires keeping me in the hospital for a few days while he monitors its effect on the afib and for any of the side effects that apparently can be bad. So they are contacting my insurance company and checking doctor and hospital schedules and will call me with the appointment.

Of course as soon as I got home I'm trying to explain to Marc what he said and I'm all over the internet reading about this med and the procedure and flutter vs afib and I'm even more confused. So I called the doctor's office with a long list of questions this morning.

Atrial flutter is rapid, but even, heartbeat defined as having 150 and up beats per minute. The highest mine has been is 125, that I'm aware of, and that was before any medication. Atrial fibrillation is irregular heartbeat with or without it speeding up. So how do they know I have flutter when the rapid beating part could be caused by afib especially since my heart rate has never been that high? When both conditions are present they interfere with each other so the typical bpm no longer applies but atrial flutter also has a very distinct 'sawtooth' pattern that shows up on the EKG and it's all over my tests.

Do I have to be having an episode to have the ablation? No. I actually asked the doctor this and when I asked how then does he know where to zap my heart he sort of chuckled and said it was his secret power, and then he answered my question. The process involves a way through tests conducted during the procedure in the heart to pinpoint the rogue spot that is sending out the signals.

If both conditions are caused by faulty electrical impulses why is ablation for afib considered more invasive? With flutter, there are only one or a few spots in the muscle tissue of the heart in the upper chambers and they can be pinpointed and eliminated. 


Ablation for afib involves all 4 of the pulmonary veins (the veins that bring oxygen rich blood from your lungs to your heart) and as they can't pinpoint the exact spots, it involves a process called pulmonary vein isolation which causes scar tissue around the veins near where they connect to your heart because that's where the chaotic signals originate for afib.


So then I got a call to pick a date, the three soonest dates were June 21, 24, 28. I picked Monday the 24th so I'll have an echocardiogram on the 24th and then go back the next day for the ablation and a couple more days while he tries the different medication so I'll be at or in the hospital most of that week. Oh joy. I barely accepted the possibility of the ablation as outpatient procedure and now I'm going to be in the hospital, the place I avoid at all costs and haven't been in a hospital as a 'patient' since 1979 when my son was born.

I am not looking forward to this.




15 comments:

  1. Oh boy. You have to trust the docs on this I suppose. It sounds complicated but cardiac medicine is very advanced now. Houston docs are likely very good. Ugh. Sorry you’re going through this. I haven’t been overnight in a hospital since 1980.

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    1. just the thought of a device in my heart zapping it freaks me out.

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  2. This has been a long and winding and difficult and uncomfortable process but if there is one thing I know about you, Ellen, it's that you are persistent and you finish what you start.
    I am in awe of you in this regard. Others, too, but that one is big.
    You have done your research, you have listened to the experts, you have made sense of it all in your mind and you know what needs to be done.
    And dammit, you'll do it!
    It ain't gonna be easy and being in the hospital sounds like a nightmare. BUT, you'll be fine and they will take good care of you and you will continue to be able to live your own unique and amazing life and that's what is important.
    You sure will have a lot of us out here thinking of you and sending you love.
    Me, for one.

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    1. I don't know. I wonder if I'm rushing into this. I went 5 days in a row with nothing last week. on the other hand if I'm gonna do it, why wait. and having to be in the hospital to try a different medication makes it kind of scary. maybe I should just take my chances with the medications I'm taking and the tolerable episodes. except this has been going on at least 6 months. so that's where I'm at...am I sure I want to do this?

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  3. hospitals shouldn't freak you out , other than the cost. You get clean sheets and ice and a little servants buzzer . It is like a vacation! Just remember to wash your hands. You will be fine, knowing how you tackle this life! Strong and can stand on your head- that is all that is required! I am pretty sure this will be just a little blip in your gardening plans, You will be just fine...you must be, because I said so, also I hurt if you hurt. You will be well. I love how you jumped right into research right away, as we do when our bodies say " Imma fuck with you a little bit , now...it'll be fun". Not today, body, not today!

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    1. I'll be bored out of my mind and sleep deprived. I forgot to ask how long before I could resume yoga!

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  4. "so that's where I'm at...am I sure I want to do this?"

    I'm hearing your fear and worry .. not so much in your blog post but in your responses to comments in here. Why not call your specialist again and have him give you the full story as to exactly WHY you need to do this and when. Ask him the what ifs.. and weigh the responses. Then ask a few more questions. Gather some thoughts and write them down. You're not the kind of person who throws caution to the wind. Make sure that this is better for you to do than not. You might want a second opinion if something is telling you it's not right. Continue to arm yourself with information and if you determine that is necessary and right for you, that's the time to put your trust in your doctor. You're a very smart woman, Ellen. And your instincts are good. All will be well. <3

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  5. Well, crap. None of the choices sound great, but I know you are nothing if not totally thorough in your research (egads - I had to look up at least six terms in this post) and will make the best choice for you. I am totally with you on hospitals. I have vowed not to enter one again unless I am unconscious and not able to prevent it. That being said, it is amazing what the medical industry can do these days - the things they can fix.

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    1. I know it's supposed to be a walk in the park so to speak but I just don't like the whole idea.

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  6. I understand what you are going through, darlin. My cardiologist explained the same thing to me. Although no drug therapy was said. She gave me a choice and we talked about it and we decided to just let sleeping dogs lie for now. In other words things were fine for now. So I understand what you are going to go through and you have my sympathies. I'm hoping everything goes well according to plans and nothing goes wrong, which it shouldn't. Personally I would take that time in the hospital as time to relax.

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    1. I had my first encounter with this two years ago and went through all the tests but they never caught it and it stopped after a couple of weeks so basically the same as your outcome, letting sleeping dogs lie. last summer it happened again for a couple of weeks and then went away. this time it's been a near daily occurrence since November. but I'm mostly asymptomatic. I can feel it happening but I don't get dizzy or pass out, don't feel especially tired, no chest pain, etc. right now I'm more concerned with this loose tooth I need to get pulled.

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  7. Well, I can understand not looking forward to it. Who would? But on the other hand, once it's done, you'll probably feel better and it will be great to have it behind you. And hopefully you'll never have to mess with those sleep monitors again!

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  8. Oh how I can relate! But this will all work out well. As I've said before, the heart is the most researched organ we have and these procedures are done all over the world and cardiologists have stringent guidelines based on very very extensive data and so on.

    Thanks for explaining it all so well. I have my appt. on the 25th with the plan for a long-term EKG at first and may end up with similar procedures.

    We have been through worse!! Get the tooth sorted and stay positive. Thinking of you.

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  9. The flutter ablation is not a terrible procedure. Being in the hospital while they observe the solatol will likely suck more. Stout heart.

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  10. The 24th is my birthday. I will be thinking of you. Hoping it is all a "walk in the park". I know you are a trooper and will handle it well. For sure, you will be glad to have it behind you, instead of always hanging over you. I have to shake my head at the comments about the hospital being a place to relax. Those people must not have been in one in awhile. My husband has been in twice since January, once for seven days, and another for nine days. Family member staying with him every night. Believe me. No sleep! No "relaxation". You have to come home to recuperate. But when you come home, hopefully, you will have some peace! I need to reread your post a few times so maybe I will understand what you have learned. Thank you for letting us know!

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I opened my big mouth, now it's your turn.