Friday, February 10, 2023

crisis


I'm telling this without asking him if he minds. Because right now, I don't really fucking care if he minds. (edit: I wrote this a week ago, he has since said no restrictions.)

Pneumonia. Of course it's way more complicated than that. This is a man who comes from a line of folk who are generally healthy and long lived. This is also a man who joined me in an artistic pursuit that did not offer the benefit of health insurance. This is a man who wouldn't have gone to the doctor anyway even if he had had insurance. This is a 71 year old man who had only been to the doctor a handful of times in over 40 years. And not once since getting on medicare, health insurance for the first time in our working lives. A lifelong smoker whose part of the creative process was sandblasting and plaster/silica mold making, who did use reasonable precautions whose breathing and lungs have been compromised for 6, 7 years? We all assumed it was from work, this state of his lungs but it turns out not so much. Turns out it is primarily because of his smoking. And I base that opinion on conversations with the doctors. It may change when he gets released from the hospital and starts going to a PC and a lung specialist but immediate diagnosis...entire left lung infected with pneumonia. Secondary diagnosis emphysema in both lungs from smoking, no obvious evidence of silicosis. The doctors in the hospital are concerned with getting rid of the pneumonia, the emphysema falls to the primary care physician or specialist. Cure the infection, then deal with the rest.

This is what I think, that Marc was feeling bad enough to quit smoking (4th try, nicotine is heinous) about 5 weeks ago which he never bothered to mention until he started to crash the first weekend in February. He started to feel bad the last week of January, appetite sort of deserted him. By February 1st feeling worse. By the 3rd looked terrible and increasingly breathless, would still not entertain the idea of going to a doctor, clinic, or hospital no matter how many times I suggested it. Saturday the 4th felt scared enough to say he would call a doctor on Monday. Dude, he's just going to tell you to go to the hospital. Sunday could barely sit up, very labored breathing, instability, pain when coughing, mental fogginess, and the cherry on top, incontinence and still refusing to get help. Called our daughter to come back me up...you can get in the car or I can call an ambulance. Those are your choices.

He got in the car.

By the time we got to the emergency room of the hospital in Bay City, he could barely get out of the car into a wheelchair. Sarah wheeled him in while I parked the car. They were on him like a duck on a june bug, wheeled him back to triage before he was even completely registered. Seemed like half a dozen nurses and techs swarmed in and were hooking him up 9 ways to Sunday...oxygen, IVs, checking vitals, starting fluids, drawing blood, X-ray and CAT scan, EKG, and with the first blood test result, low kidney function. The doctor came in before they were even finished hooking him all up, quizzing Sarah and I. Before he sent him off for the chest X-ray he said 'Don't know what we will find, but it won't be good.

Well, we already knew that.

The doctor came back after the X-ray, his entire left lung was encased in infection, basically completely whited out in the X-ray but the CAT scan did not show a mass hiding under the infection, about the only good news of the day.

As soon as they had all that done they took him to the ICU.


More to come.



28 comments:

  1. Oh Ellen, this is hard. Yes, can confirm the man thing. In my mind, it's based on fear first, stupidity second. But for now, let's get him better, hold his hand and cheer him on. Sending hugs and best wishes.

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  2. First, I'm glad to see you back in blogland. I'd wondered what was going on.

    So sorry to hear about Marc and his illness. I didn't realize he is a smoker (or if I knew that I forgot) -- that does complicate things. I hope they get this pneumonia knocked down without too much trouble and the emphysema proves manageable. My dad got pneumonia many years ago (he was a smoker too) and he said afterwards that he didn't realize it was possible to feel so bad -- so I'm sure Marc is not having a good time. Please keep us updated.

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  3. You've both been through hell, I would imagine. I sure do hope that things can be gotten under control and that life can at last achieve a new sort of normal for you both. How are YOU?

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  4. Sounds scary and exhausting for both of you. Glad you got him to the hospital. Hope he improves each day and can come home soon.

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  5. So sorry to hear about this awful time for both of you. I just hope Marc starts to improve soon, now that he's getting good care. Meanwhile if you can try to rest, that would be good. It's exhausting worrying about a partner in the hospital, dealing with medical carers, visiting back and forward.

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  6. I kept checking for news and while it's not the news hoped for, at least you know, and he is getting help. Most men make poor "patients." He is so lucky to have you. Both of you be well. And, to quote Picard, "Make it so!"

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  7. I so hope things work out well for Mark and that he recovers and can come home soon. Sending Mark, you, and your family the very best wishes from my heart to yours. Please take care there, and thank you for keeping us posted.

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  8. Oh Ellen my heart is with you and your family. ♥️✌🏼

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  9. Cyndy Oliver here…holding all of you in my thoughts. Sending out prayers to Gods and Goddesses of stubbornness, pulmonary health and recovery. Maybe the stubbornness that kept him from seeking help will be the stubbornness that helps him heal. I know it’s inefficient to help— these weird prayers to unknown gods and goddesses— but it’s all I can do other than to care. Please know that I am thinking of you and yours. I oddly understand his resistance and stubbornness, and also your fury and frustration with his resistance. And Fuck Nicotine. The hardest thing I ever quit was nicotine and it required a medical intervention with smoking cessation drugs. so Fuck Nicotine.

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  10. So sorry for him, and especially you. A care-giver! This process has got to have been hard on you. So for now, get as much rest as you can. Eat well...a hard thing to do sometimes with hospital cafeterias, or worse yet, machines. I say this more from hearing how others found themselves drained completely after finally getting the one who was sick some help. I also do hope he heals well and can stop smoking. I was hospitalized with pneumonia a few years ago. The road back to wellness was a very long one, which depends a lot on one's age and abilities.

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  11. I am so sorry it came to this. Here's hoping they get the pneumonia under control. Take care of yourself, this will be exhausting.

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  12. ELLEN!!! fuck- isn't ones responsibility to take care of oneself for the sake of other loved ones? Dang, he let that go - wonder what he was thinking - that there might be "bad news"...Lung stuff is so dark and painful, I realize willing oneself to die when oxygen is not getting in...The worst illness I ever had was bilateral pneumonia, dark and heavy. Denial - such a dangerous enemy. I am thinking about you , wishing you strength and goodwill through this. LOVE

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  13. OMG! I do hope the both of you make it through unscathed. David was the same way. I made him go to the ER with his violent headaches. The tech said he had an artery ready to pop which had his daughter and me scared to no end. Turned out that when we went to see the brain specialist in San Antonio that it was a smudge on the films and the tech misdiagnosed. He has high BP and that was the cause of his headaches. They are now under control, thank the Goddess. Really I do hope everything turns out good for you both. Sending good vibes and heart felt hugs.

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  14. Im so very sorry. Hoping for quick healing. Nicotine is indeed heinous. Took me five tries to finally give it up. Lighting a candle for both of you.
    Xoxo
    Barbara

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  15. Welp, I want things to get better. I like Mark and want him to get better. As a one-time smoker, I understand everything. As a guy, I understand the behavior. My only advice is none at all. I can't say or explain anything that would make a difference, so I'm just going to say please get better

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  16. Man this sounds so much like what happened to my dad, but he doesn't smoke. I even think it was the same lung that was almost completely white. Fortunately for him it seems like he went to the emergency room sooner than you guys. Here's hoping that they get him sorted out & back home soon!

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  17. Ellen Starr and Lisa have kept us updated about Marc. We are so sorry to hear what all he is goi g thru. Our thoughts and prayers are with you both. Hugs 🌹🌹

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  18. Well, at least we know. Nicotine sucks. Another artist friend who also smoked said "It's a monkey on your back!" It is, indeed. It took me three serious attempts to quit. Another friend was felled by double pneumonia. Four or five weeks in hospital on his back cured him of pneumonia and smoking.
    I hope the next installment is better news; that he is quitting and he is recovering. There is no recovery from COPD, only control. But if he can quite cigarettes, he can deal with COPD.
    I'm thinking of you and Marc.

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  19. I'm glad he finally went in, but holeymoley! Sounds like he's in good hands - sending my thoughts to you and Marc.

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  20. It is terrifying. I am glad he is getting the health care he needs. Take care of yourself as well. I am holding you both in my thoughts ~

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  21. Ellen, I'm sorry to see this happening to Marc and to you too. I know how hard it is to quit smoking. At the risk of sounding obvious, let me recommend nicotine patches. They helped me quit years ago. I smoked unfiltered Camels for almost thirty years, and the nicotine dose through the skin got me past the craving. I cut the patched into smaller and smaller sizes until I didn't need them any more.

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  22. What a frightening experience for you both. I understand the tendency to put things off, but there comes a point when dealing with reality has to happen. I'm glad Mark got to the hospital, and I'm especially glad that the staff recognized it as an emergency situation. I hope that by now he's out of ICU, and doing as well as might be expected. Take some care for yourself, too -- situations like this are hard on everyone.

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  23. I think men “of a certain age” believe stubbornness = manliness, and taking care of their health is a sign of weakness. I went through a health crisis with mine last summer and he was in the hospital a only a week. I hope Marc is responding well to treatment, fingers crossed for a full recovery. Tami Coatsworth

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  24. Oh Ellen. I hope Marc has a speedy recovery. It's that time in our lives that it all catches up with us...
    Nicotine gum.....helped my brother.
    Bless you both!!! Your longtime friend from Denver....

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  25. I'm so sorry to hear about the pneumonia and other lung issues for Marc. It sounds like it'll be a long recovery process but I hope it all goes well.

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  26. Sorry to hear about all of this. Sending well wished to you all. Howard Kanelakos

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  27. Dear ellen, are we married to the same man? Mine refuses to go to the doctor too, and as you may know, ended up similarly in crisis with an infected heart valve and spinal vertebrae, which had been coming on likely for years. The scene was very much as you describe here, the swarm of medical personnel offering urgently needed care, and two days later he was in the OR having open heart surgery to replace the aortic valve. He recovered fully, thank god, though he was off work for five months. Fortunately, he is not a self-employed artist as we are, and had good insurance. He went to the doctor for a while, two years, after he healed (this all happened in 2017) but I regret to say that despite having a non human valve in his heart, which is supposed to be regularly checked, he had reverted to his old, non-doctor visiting ways. I hope Marc will do better. My heart goes out to you. Please email me if I can be of any help to you as you go through all this, even if it's just to process questions, feelings, fears, hopes. You are a rock, woman. Marc's lucky to have you.

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I opened my big mouth, now it's your turn.